top of page

CMT 1e Research

CMT1e Research Group is a dedicated 501(c)(3) nonprofit organization. We focus on advancing research for the rare CMT 1e subtype, driven by patients and their families.

Dedicated to driving research demand for CMT 1e patients. We are a international patient led 501 (c)(3) non-profit organization connecting research scientists, clinicians and biotech organizations to collectively tackle this devastating disease without a treatment. We do this by hosting an annual international scientific summit to unite the top neuroscience researchers, clinicians and biotech companies for the common cause of finding a cure for CMT1e. We work closely with the Muscular Dystrophy Association, CMTA, CMTRF, HNF, CureCMT and CMT France.

Join Our Research Mission

Events

 CMT 1e Scientific Summit
 CMT 1e Scientific Summit
Sep 28, 2025, 8:00 AM – 4:00 PM
Cambridge,
25 Edwin H Land Blvd, Cambridge, MA 02141, USA

Our Mission

Empowering Neurology

The CMT Research Collective for subtype 1e is committed to advancing scientific knowledge in neurology. With a focus on earlystage research for Charcot-Marie-Tooth subtype 1e, we aim to drive innovative solutions and improve understanding of this rare neurological disorder.

Current Research Initiatives

Study Grants

Our study grants support groundbreaking research to enhance treatments for CMT 1e.

Publications

Stay informed with our publications that delve into the latest research findings and advancements in CMT 1e.

Collaborations

We collaborate with leading institutions and researchers to further the understanding and treatment of Charcot-Marie-Tooth 1e.

Follow Us

Key Focus

Research Grants

Our research grants provide vital funding to support projects that aim to uncover novel insights and therapeutic strategies for CMT subtype 1e.

Public Awareness

Raising public awareness is crucial to increasing understanding and support for individuals affected by CMT 1e.

Community Engagement

Engaging the community fosters collaboration and shared efforts to accelerate progress in CMT research.

Supporting Neurologic Innovation

Call 803.493.7744

Thomas Sander

1702 Fairntosh Dr Ft Mill, SC 29175

  • Facebook
  • Instagram
  • X
  • TikTok

 

© 2035 by CMT Research Collective for rare subtypes. Powered and secured by Wix 

 

bottom of page